![](\"https:\/\/i.dailymail.co.uk\/1s\/2023\/12\/06\/18\/69527783-12833389-Silly_bunch_We_re_so_goofy_all_of_us_and_just_weird_We_re_a_fami-a-54_1701885942436.jpg\")
<\/p>\nBruce Willis’ family is said to be ‘soaking up every moment’ with him while they still can.<\/p>\n
The Die Hard actor, 68, has frontotemporal dementia (FTR) – an uncommon form of the disease which causes a deterioration in personality, behavior, and language – and now an insider has claimed that despite the sad nature of the situation, it has actually ‘brought the whole family closer together’ as they rally round to support him.<\/p>\n
A source told this week’s edition of UsWeekly: ‘Bruce has good days and bad days, but in the last two months, there are many more bad days than good. This experience has brought the whole family even closer together.’<\/p>\n
His wife Emma Heming Willis recently fought back tears while sharing an update on his health.\u00a0<\/p>\n
<\/p>\n
Bruce Willis’ family is said to be ‘soaking up every moment’ with him while they still can; Demi Moore, Emmy Heming Willis, Bruce, Tallulah, Scout, Rumer, Mabel and Evelyn Willis pictured<\/p>\n
![](\"https:\/\/i.dailymail.co.uk\/1s\/2023\/12\/06\/18\/78654655-12833389-The_Die_Hard_actor_68_has_frontotemporal_dementia_FTR_an_uncommo-a-36_1701888261044.jpg\")
<\/p>\n
\u00a0The ‘Die Hard’ actor, 68, has frontotemporal dementia (FTR) – an uncommon form of the disease which causes a deterioration in personality, behavior, and language – and now an insider has claimed that despite the sad nature of the situation, it has actually ‘brought the whole family closer together’ as they rally round to support him<\/p>\n
‘No one knows how much time Bruce has left, so they’re soaking up every moment they get with him. [Everything] revolves around him Bruce has around-the-clock care, but at least one family member is always with him.’<\/p>\n
Bruce – who is married to model Emma Heming Willis, 45, but has daughters Rumer, 35, Scout, 32, and Tallulah, 29, with ex-wife Demi Moore\u00a0– became a grandfather for the first time when his eldest welcomed daughter Louetta in April.<\/p>\n
A second insider went on to add that the House Bunny star is keen to make sure the little one is ‘involved’ with Bruce, who was spotted on a rare outing, as much as possible.<\/p>\n
The source said: ‘Once Bruce was diagnosed, everyone came together to keep his memory of the family intact and to be there as a constant reminder [that they] love him.’<\/p>\n
Adding: ‘Rumer wants to make sure Louetta knows [Bruce]. She wants him to be actively involved in Louetta’s life. It’s a very special bond.’<\/p>\n
![](\"https:\/\/i.dailymail.co.uk\/1s\/2023\/12\/06\/18\/78655455-12833389-_No_one_knows_how_much_time_Bruce_has_left_so_they_re_soaking_up-a-34_1701888261038.jpg\")
<\/p>\n
‘No one knows how much time Bruce has left, so they’re soaking up every moment they get with him. [Everything] revolves around him Bruce has around-the-clock care, but at least one family member is always with him;’ pictured with daughter Tallulah<\/p>\n
![](\"https:\/\/i.dailymail.co.uk\/1s\/2023\/12\/06\/18\/78655443-12833389-Bruce_who_is_married_to_model_Emma_Heming_Willis_45_but_has_daug-a-37_1701888261048.jpg\")
<\/p>\n
Bruce – who is married to model Emma Heming Willis, 45, but has daughters Rumer, 35, Scout, 32, and Tallulah, 29, with ex-wife Demi Moore – became a grandfather for the first time when his eldest welcomed daughter Louetta in April; pictured with daughter Rumer and granddaughter Louetta<\/p>\n
![](\"https:\/\/i.dailymail.co.uk\/1s\/2023\/12\/06\/18\/78655949-12833389-Bruce_and_Emma_share_two_daughters_Mabel_Ray_11_and_Evelyn_Penn_-a-38_1701888261049.jpg\")
<\/p>\n
Bruce and Emma share two daughters: Mabel Ray, 11, and Evelyn Penn, eight; the couple pictured on September 11, 2009 in NYC<\/p>\n
![](\"https:\/\/i.dailymail.co.uk\/1s\/2023\/12\/06\/18\/69528845-12833389-Bruce_and_Demi_divorced_in_2000_and_she_married_Ashton_Kutcher_i-a-35_1701888261041.jpg\")
<\/p>\n
Bruce and Demi divorced in 2000, and she married Ashton Kutcher in 2005, while he married Emma in 2009. Despite that, the exes remain good friends to this day. Bruce and Emma seen October 11, 2019 in NYC<\/p>\n
![](\"https:\/\/i.dailymail.co.uk\/1s\/2023\/12\/06\/18\/78656761-12833389-Bruce_became_a_household_name_in_a_number_of_films_including_Pul-a-39_1701888261051.jpg\")
<\/p>\n
Bruce became a household name in a number of films including Pulp Fiction, Die Hard (pictured), Moonlighting, Armageddon, The Fifth Element, 12 Monkeys, Unbreakable, Tears of the Sun and many more<\/p>\n
Bruce and Emma share two daughters: Mabel Ray, 11, and Evelyn Penn, eight.<\/p>\n
The couple married in 2009.<\/p>\n
Just weeks ago, Emma admitted she feels fortunate for the ‘resources’ she has during such a difficult time even though she feels ‘guilty’ that others don’t have access to them as well.<\/p>\n
She told Maria Shriver’s Sunday Paper: ‘I struggle with guilt, knowing that I have resources that others don’t.<\/p>\n
‘When I’m able to get out for a hike to clear my head, it’s not lost on me that not all care partners can do that.<\/p>\n
‘When what I share about our family’s journey gets press attention, I know that there are many thousands of untold, unheard stories, each of them deserving of compassion and concern.’<\/p>\n